We stayed at the Hilton Garden Inn in Frisco near Stonebriar Mall. We went to see "Despicable Me" in 3-D (it was $34 for 3 tickets!), ate pizza, played games and had Presley's face painted at Gattiland, and swam in the hotel pool. There were two queen beds in our hotel room. Presley told me I had one bed and her and dad had the other. When I questioned her about that, she told me she was a bed hog and she knew I liked my room.
When she woke up on Friday morning, she asked if she had woke up early enough for a drink (6:45 am). When I answered no (it was 7:45) you laid your help down in your lap, so sad.:(
When we arrived to check in at the hospital, the receptionist asked if we were her for surgery. We had done good the entire time calling it a procedure to not upset Presley until now. Presley did good and did not freak out. I was glad and surprised she did so well.
They took us back to the pre-op room quickly. Presley began to get a little weepy when the nurses started to come in and ask questions. She did freak out when the first time they scanned her arm bracelet before they gave her medicine. But when she realized it was just like the scanner at the grocery store, she was okay.
The nurse noticed Presley's new stuffed puppy dog. He asked if the puppy had a name. Since it was new, it did not. So the nurse decided to name the puppy, Steve. When I went back to the recovery room, in surgery the nurse had put a piece of tape on the puppy's mouth and wrote "Steve." Presley decided the name was okay. So her surgery puppy is officially named Steve.
After they gave Presley the silly juice in the pro-op room, she was fine. She was not nervous or scared. I was glad. My experience with putting her under for the VCGU was hard for me. She was scared and crying. It took everything in me not to cry with her. So this time it was easier for me because she was calm.
The official name of the procedure is Bilateral Urinary Reconstruction. They take the tubes that attach to the bladder, criss cross them and reattach them. This elongates the tubes so when the bladder fills with urine, the tubes will compress and prevent any reflux. They took her back about about 10:30, they called with a report they were half way through at 11:30 and the doctor came out to talk to us at 12:45. About 20 minutes later I went back to the recovery room with her.
Presley was such a trooper. She did well coming out of the anesthesia. She was in pain, but did so well the entire time.
Our hospital stay was good. The nurses at Children's Medical Legacy were wonderful. Getting up to go to the restroom was a challenge, at first, but Presley quickly figured out how to get in and out of her bed without much pain. It was so sweet to she her and her faith. She was scared about having to get out of her bed the first few times. I look over at her and she had her hands folded and eyes closed and is praying to God for it not to hurt too bad. She repeated this many times getting out of bed, trying to go to the restroom and not wanting it to burn, coughing, etc... At the tender age of five she already knows who to turn to when she is afraid. God was good to answer her prayers.
It was long first week. She was hunched over like her nanny, she walked very slow and gingerly, we went to the bathroom at least 20 times a day, we had several accidents, but each day got better. She loved sleeping with us for that week and was not excited about moving back to her room when she was able to walk up and down the stairs. By the end of week two, you could barely tell she had had a major surgery. She had to sit out of recess and P.E. for the first week of kindergarten, but by week three she was back to her old self!
I was amazed at how wonderful Presley handled the entire situation. She was brave, tough, patient, kind, cooperative. Now that she knows she can handle surgery, she thinks she is ready to tackle the dentist and cavities. I am hoping that too!
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